On Thursday 1st September 2016, we will be joining others to watch Bournemouth Pier #glowgold to help raise awareness of childhood cancer and this is why:
Because my seven-year old son doesn’t know what to say when people ask him how his brother is.
Because my daughter gets frustrated that she can’t tackle her brother at football even though he tackles her.
Because he has low immunity he has to avoid crowded social events where infection cannot be traced.
Because my husband wakes at night in utter panic and fear about what has been and what the future might hold.
Because my child is not a fussy eater but exposure to the wrong types of food and water could be life threatening.
Because he used to be the fastest sprinter in the school, now he struggles to run at all.
Because his grandparents struggle every day with the helplessness of seeing not only their grandson suffer but their son and daughter hurting beyond words.
Because sometimes children do not want to tell a stranger why they are not in school.
Because when my son answered a questionnaire he said he felt ugly.
Because his friends are scared that the same will happen to him as happened to that person on the TV.
Because, sometimes, people just don’t know what to say to me.
Because asking a child to remove their hat on a theme park ride is one of the most devastating things to happen to them.
Because my son has developed a medical vocabulary beyond his 10 years.
And most of all, because very time I look at my son it breaks my heart to think about what he has been through and how his life has changed irrevocably.