26 Apr Our Chemo Countdown Begins …
I’m not sure if a one-year countdown is really in the true spirit of a countdown but I’m already getting excited at the prospect of Felix finishing treatment.
We are not 100% sure of the exact date yet, this will be confirmed by our consultant at Southampton Hospital. Felix thinks it’s 23rd April 2019, I’ve got 26th April 2019 in my mind and Dr H has estimated the beginning of May. No matter what we are entering the last 12 months of treatment. I have no idea what end of treatment will be like for us but I’ve heard it can be quite tough readjusting to life without the safety and security of regular blood tests and clinic appointments. I’ll worry about that when we get there.
I can remember when Felix was first diagnosed and we heard the treatment plan for Acute Lymphoblastic Leukaemia was 3 years and 3 months for boys. I was so worried that Felix’s, Tals and Ru’s childhoods would be dominated by the diagnosis and almost wished he was a girl with the treatment plan being only 2 years and 3 months for them. It seemed such a long time. Felix wasn’t even halfway through Year 5 and the treatment would last until nearly the end of Year 8. He was only just 10 and he would be well over 13 by the time he had his last chemotherapy. All these thoughts ran through my head. I can remember feeling bewildered by the fact that Rufus would be 10, older than Felix was then and Tals would be knocking on the door of her GCSEs. Felix joked that we might’ve won the World Cup by the end!
However, here we are with less than a year to go. I can’t wait for Felix and the kids to start the rest of their lives. We had a life before diagnosis (BD), during diagnosis (DD) and now the hope of life after diagnosis (AD). I know that on that first day of AD, either 24th April 2019, 27th April 2019 or the beginning of May, Felix will endeavour to do the following:
- Have a Mister Whippy followed by a MacDonalds Milkshake and rounded off with a Slush Puppy
- He will have a glass of tap water WITH ice
- He will enjoy eating that night until when HE wants
Felix has been living with food restrictions since January 2016 and whilst they are minimal, I can’t wait for him to eat and drink what he wants and when he wants. The freedom of choice is so important and one that he has missed out in the last two years or so. There is also the fact that his taste has been changed by the chemotherapy. Right now, he doesn’t taste things in the same way as he did BD and on Fridays and Saturdays his appetite diminishes because of the effects of the methotrexate.
I’m looking forward to saying goodbye to the risk and threat of infection and neutropenia and blood counts and hospital admissions and the constant worry of relapse. I know the fear of relapse will never go but I’m hoping the further we get the fear will lessen.
I will certainly be documenting this countdown. To be fair, I don’t think Felix is going to bat an eyelid so I will need this outlet to share my excitement and trepidation so that we continue to keep the diagnosis on the sidelines where it needs to stay.
Please bear with me during this time … It doesn’t take much for me to get over excited!
How about you? Are you counting down to a significant event? Maybe we could count down together? Let me know!