A Guest Post #BeingHuman #blogit #1

I was recently asked if I was interested in supplying a blog for a fellow oncology mum’s blog page. She’s a highly respected and successful blogger so it’s nice to be able to get to a wider audience and increase my own visibility, but truth be told that isn’t the reason that I chose to write. I’ve mulled over the topic for a while thinking of what angle I can take on the topic, coming up with some ideas but nothing really felt right or held any cadence, that is until 10 minutes ago when I got a text from a young chap I met at the weekend – calm down, much more harmless than you think!

You see, we were at a charity event called the LimbPower Junior Games which is an annual event at Stoke Mandeville Sports Centre. It’s a sporting event for those with limb difference, in which children get to try a vast range of adaptive and inclusive sports. We went last year, when M was just finished chemotherapy and was only just coming to terms with being an above knee amputee. The whole family participated and loved it so much that we were determined to go back again this year. It is a fab day and LimbPower really is a worthwhile and forward-thinking charity, so if you know someone who has limb difference (congenital or acquired) they are worth looking up (limbpower.com).

Danny spent a considerable amount of time chatting to M and discussing how she can communicate more effectively with our Enablement Centre in order to get the most from the provision of a sports limb. He has since texted me asking for further contact details so that he can forward information to help us in selecting limb components etc, and it was then that I had my lightbulb moment (which M will find even more amusing as only this morning as I was driving her to school she asked what I was doing with a lightbulb in the car’s centre console “Do you hold this up above your head Mum, and wait for a great idea?”, “Oh if only it were that simple Love” I replied – but I think she might have a point, so I might not remove it just yet!!).

But Danny’s text today made me realise the ‘being Human’ has what has gotten us through M’s cancer / amputation … Being human to me, is about having frailties, recognising them in yourself and seeking help, but also supporting others. There have been so many individuals who have picked us up, comforted, shown love, care, compassion and thoughtfulness to us (all started out as complete strangers – many have become trusted friends and caring advocates). These connections were often forged when we are least expecting them and probably when we most needed it. I personally don’t believe in divine intervention but to clumsily paraphrase … maybe there ‘are’ more things in Heaven and Earth than in my philosophy. All I know is when I needed strength and guidance it came to me – through human contact and interaction. It only takes a few moments looking at current global events to be reminded of the quote “When I was a boy and I would see scary things on the news, my mother would say to me ‘Look for the helpers, you will always find people who are helping’” F. Rogers.

I also feel that truly ‘being human’ is contagious. I see first-hand those that have been helped reaching out and helping others, through charities or trusts, bereaved oncology parents go forward with their grief and try to make a difference to those who are still going through treatment, those who are widowed set up groups to elicit further ongoing support … the list goes on. Behind every charity or support group you encounter I believe there will be individuals who have experienced pain and loss and want to assist others.

For me too it is also becoming important to contribute and support others, feeling united by our common experiences and with that aim of trying valiantly to help and support those who are going through similar circumstances. I didn’t choose to become an oncology mum, but now that I am, I have developed a skill set and experience base that strengthens my daily life. I know what diagnosis day feels like, what surgery day fears are, and how every x-ray brings ‘scanxiety’, and I have learned many techniques in coping and not coping. These have been born out of the human beings that have surrounded me through my daughter’s diagnosis and treatment and beyond.

So, my reason for doing this blog is for someone I have not yet met, but I feel to be a kindred spirit who has soul, grit, love and smidgen of vulnerability, whom has listened and counselled me and who I know will continue to do so, and therefore I feel universally lucky to have this fellow human being as my friend.

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